Well the Ronald McDonald House is a great place. Unfortunately, we aren’t there today. Yep, we’re back in the hospital for a couple of days. Just in time to watch the fireworks from a second floor window. We’re slowly collecting hospitalized holidays.
Fortunately, Kajsa’s issue right now has as much to do with being on strong drugs with a normal kidney as anything else. You see, she has a drug called Cellcept, which is notorious for causing diarrhea..and boy, did it work on her. So she go super dried out this weekend. This created an acidotic state as well as driving up her creatinine. And without the benefit of dialysis, she simply acted like any other toddler – and got sickly. So her we sit, bored (me) and sleepy and grumpy (her).
But we aren’t even giving up our space at RMH, since they hope to have us out within a couple of days. I certainly hope so, as my folks fly in on Thursday. Right about now, I sure can’t wait to see them. Maybe I can even be babied a bit for a little while ie: shower, sleep, and let someone else change a diaper.
If we get a chance, we’re also going to try to drive up to our home this weekend. Yippee. We’ll see.
In the happy news, Kajsa had what, for her, is pretty much her first bath on Sunday. we climbed in together and played with bubbles, splashed and really, thoroughly washed her hair. It was delightful. She gets de-accessed on Fridays, so we’ll be able to have bath-time fun each weekend.
I’ll update asap. Thank you everyone for your happy wishes and good vibes. It always feels so great to come here and see them cheering us on. I’ll give Kajsa extra hugs for all of you.