Thankful Thursday

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Running2Ks has a great thing she does on her blog. It is a repeating entry she calls Thankful
Thursday. She posts things, events,
people, and such for which she is thankful that week, no matter how big or
small.

So while spreading her gracious spirit, and giving credit where credit is due…I
submit mine this week. I will try to
remember to do this again next week.

The main (personal) thing that I am thankful for this week
is that I  finally found a pediatrician
for Kajsa this week. You see, because of
her kidney disease, her primary insurance is Medicare. Yes, this is the same thing that you see
senior citizens receiving. Unfortunately, this means that most pediatricians are unable to see her. Those who can are generally taking no new Medicare
patients. We have spent the last six
months trying to find a competent pediatrician who can and will see her. Finally, with the help of our nephrology
clinic’s social worker, Lisa, we now
have one. Her name is Dr. Sarah
Bode. Not only is she affiliated with
Phoenix Children’s Hospital, but she has done a nephrology rotation. I’m very excited. Getting caught up on all of her wellness care
brings Kajsa that much closer to transplantation.

Another (HUGE) thing that I’m thankful for is the fact that
we live in an area with little or no natural disasters. This is actually a fairly difficult thing to
do. I grew up in the south and mid-west,
where we were regularly tormented by tornados. I then moved to
Seattle. While I was there, my mom worried constantly
that I’d be buried within a fault. This
week’s images of Hurricane Katrina have truly brought this to the forefront of
my mind. I am so sad for all the people
who have been impacted by this disaster. I am also thankful that my family and life were not a part of it.

Lastly, I am thankful that Maya brought home a progress
report today. So far, she’s getting all
A’s. She’s such a bright child and she
works very hard. Tomorrow she is going
to her first school football game with her friend Emily. I hope she has a great time.

So there you have it…my contribution to Thankful
Thursdays.

Lastly,

Thank You.

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6 thoughts on “Thankful Thursday

  1. So glad you found a doctor for your daughter. Kidney disease is the bane of my family as well. I’m getting close to the age where it usually shows up, so am keeping a close eye on creatinine levels. My mom is a transplant recipient and doing absolutely fabulous with it.

  2. I’m happy to hear about your mother. The successful transplant part, that is. Sorry, though, that you have to go throught the Creatinine monitoring, too. Good that you know to do so. With Kajsa, we didn’t know anything was wrong except that at six weeks she was loosing weight and had no energy.

    It turns out that there were lots of warning signs for kidney issues in my husbands family. Its just that they were so spread out that no one had ever seen them as connected in any way. The human body is so bizarre and so miraculous. It is sometimes hard to believe.

    I wish you all the luck in the world with your kidneys and those of your girls. Hopefully, you’ll all be spared.

    Again, thanks for dropping by.

  3. We are really proactive about it with our doctors now. My mom’s creatinine was dropping for years before a podiatrist of all people noticed the trend in her medical records–even though they knew kidney disease is rampant in the family. My mom’s grandmother, her dad and every single one of his siblings had it, and I think something like 3 out of 5 have it in Mom’s generation. So I figure my sisters and I probably have a 50% chance of getting it. So I have my doctor monitor my creatinine very carefully, and we check the kidneys of our kids carefully with a level 2 ultrasound during gestation.

    It’s a really strange kidney disease, too . . . it’s not polycystic or any other known pattern. It has no other symptoms than just unexplained, progressive kidney failure.

  4. *thanks*

    I am really happy that you have a great doctor. That is incredibly hard to find in this day and age. I’m glad to hear Kajsa will be getting the help and support she needs.

  5. Glad you found a good doc for Kajsa. I’m sure that’s such a relief. And congrats to Maya for having all As so far. 🙂
    Enjoy your weekend!

    P.S. Thanks for your post the other day about Tibet. Glad to hear that others are aware of the situation as well.

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